| Acronym: | Machado-Joseph Disease_TRY |
| Cost Center: | 957 |
| Title: | Azorean MJD Trial Ready Cohort |
| Start-End: | 25-10-2019 - 24-10-2020 |
| Beneficiary Entity: | Fundação Gaspar Frutuoso |
| Gestores da FGF: | Bruno Machado, Fábio Sousa |
| Responsible Researcher: | Maria Manuela de Medeiros Lima |
| Organic Units: | FCT - Faculdade de Ciências e Tecnologia |
| Total Financing: | 10.000,00 |
| Outras Fontes de Financiamento: | 10.000,00 (100.0 %) |
Service Provision Description:
The following service provision includes the following activities:
- Maintain and develop the ESMI cohort by continually recruiting new SCA3 individuals, persons at risk and control subjects into the ESMI Cohort and conducting baseline study visits for newly enrolled studies and follow-up visits for previously enrolled ESMI cohort subjects according to the ESMI study protocol;
- Execute quality assurance measures for ESMI data and biomaterials collected in accordance with the procedures established in the consortium;
- Perform analyzes of ESMI data and biomaterials collected as established within the consortium;
- Maintain the “SCA Registry” (database in which all ESMI clinical data are being collected).
